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Youth Lived Experience Advisory Board (YLEAB)

About the Program

This program provides a leadership role for youth and young adults with lived experience of rheumatic diseases, with aims to shape policies, advocate for rights, and raise awareness of rheumatic diseases. Focuses on integrating personal experiences into TAPC's mission and vision, this program promotes inclusivity, understanding, and compassion for those living with rheumatic diseases.

Roles and Responsibilities 

  • Participate in discussions to shape TAPC’s mission and vision.

  • Share personal experiences to provide insights and perspectives.

  • Assists with strategic planning 

  • Is part of the core board groups on grant projects

  • Guide the organization through recommendations and feedback.

  • Advocate for individuals with rheumatic diseases.

  • Engage in public awareness activities and resource creation.

  • Take on leadership roles within the board.

  • Participate in professional development opportunities.

  • Work on 2 main projects for TAPC using lived experience and in a group setting

Requirements

  • Aged 14-25 with lived experience of rheumatic diseases.

  • Parental consent required for those under 16.

  • Commitment to at least one year of active participation.

Benefits

  • Play a vital role in shaping TAPC’s direction.

  • Improve lives of individuals with rheumatic diseases.

  • Promote a more compassionate and informed society.

Meeting Structure

  • Monthly meetings

  • Additional meetings as needed.

Board Structure

  • Confidentiality and respectful communication are paramount.

  • Compliance with TAPC policies and guidelines.

  • We are looking for 8 members with different rheumatic diseases located in different areas around the world. 

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